17 April : World Hemophilia Day
17th of April is observed as the World Haemophilia Day . The day aims to raise awareness for hemophilia and marks the birth anniversary of Frank Schnabel, the founder of the World Federation of Hemophilia. The day also creates awareness about other bleeding disorders.
The day dates back to 1989, and since then numerous communities come together to raise awareness about the disorder. The day also shed light on a better understanding of the issue. And also appreciated the continuous advances in treatment.
What is Hemophilia?
Hemophilia refers to a bleeding disorder that causes extreme bleeding. People who are suffering from the disorder may bleed due to deficiency of clotting factor lX .
Hemophilia is sometimes referred to as “the royal disease,” because it affected the royal families of England, Germany, Russia and Spain in the 19th and 20th centuries. Queen Victoria of England, who ruled from 1837-1901, is believed to have been the carrier of hemophilia B, or factor IX deficiency.
History and Significance
The celebration of World Hemophilia Day was started by the World Federation of Haemophilia (WFH) in 1989 and the organisation chose April 17 to celebrate the day in honour of the founder of WFH Frank Schnabel.
The disorder was initially discovered in the 10th century and was found mainly in males. At that time, the disease was known as Abulcasis. Later in 1973, haemophilia genetic disorder was further bifurcated into two types namely A and B. However, no proper treatment was found till that time.
Then, it was the time to create awareness about the disease and shed light on a better understanding of the disease as haemophilia is a serious health issue. Back in 1963, the WFM was established with the aim to improve treatment and care for all hemophiliac patients.
On this day, several awareness campaigns, conferences, workshops, etc. are being organised. People also perform a different kinds of activities to inform the general public about Haemophilia disease. Also organise poster making or such creative events for students which increase their knowledge and interest towards the disorder.
Written By: Ritika Jain, 3rd Year BDS, Government Dental College, Raipur, Chattisgarh